Living with Craniosynostosis - BBC Podcast | Technology in Motion

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Living with Craniosynostosis – BBC Sounds Podcast

Living with Craniosynostosis – BBC Sounds Podcast

A Journey of Hope: Arthur’s Battle with Craniosynostosis and the Role of Technology in Motion’s TiMBandAir CS

Craniosynostosis is a condition in which the bones in a baby’s skull join together too early. This can lead to an abnormal and misshapen head, developmental delays and possible neurological issues. In hopes of raising awareness for the condition and shedding light on the role that Technology in Motion’s TiMBandAir CS helmet has played in transforming her son’s life, one brave mother, Daisie has shared her story of Arthur’s journey with Craniosynostosis on BBC Sounds.

This blog post shares insight on Arthur’s condition, the innovative TiMBandAir CS technology utilised in his treatment, and the importance of spreading awareness about Craniosynostosis.

Life with Craniosynostosis

Arthur was diagnosed with Craniosynostosis within the first few months of life. By then, the early fusion of one of the sutures in his skull was causing his head shape to deform with some facial deformation as well. His parents were naturally concerned as the only option was to undergo surgery to release the fused suture. Using newly introduced minimally invasive surgery to release the suture, continuation of treatment using a series of corrective helmets was necessary to allow the head shape to grow back into normality. This is where Technology in Motion’s TiMBandAir CS (craniosynostosis) comes in as it is an integral part of treatment following endoscopic surgery (which is much less invasive than traditional surgery). To allow the skull to correct, Arthur wears a helmet for 23 hours a day and will continue to do so for up to a year, ensuring his head shape corrects and grows back towards normality.
This 3D-printed helmet is proven to be lighter in weight with full ventilation than other helmets available and makes his helmet therapy easier and more manageable.

Understanding TiMBandAir.

TiMBandAir Helmet in black

TiMBandAir CS is a 3D-printed lightweight, ventilated helmet /orthosis that is individually made for the baby after surgery. It can be used to shape and mould the baby’s head gently until the skull has grown, usually for about 12 months following surgery. It is made from a fully ventilated lightweight 3D-printed outer shell that allows for air circulation to keep the baby comfortable while the in built corrections gently allow the skull to reshape. Arthur’s helmet is custom-fitted and modular, ensuring that it grows with him to provide optimal support throughout his journey to a normal head shape.

The Benefits and Results

By wearing the TiMBandAir for 23 hours a day, Arthur has made remarkable progress in his recovery. The helmet allows Arthurs head to grow naturally whilst reshaping his skull.  Arthur’s parents have reported noticeable improvements in his head shape, development, and confidence despite the potential risks and complications associated with Craniosynostosis.

Raising Awareness for Craniosynostosis

Craniosynostosis BBC Sounds Podcast

Daisie’s decision to speak about Arthur’s experience with Craniosynostosis on BBC Sounds highlights the importance of raising awareness for this condition. Many parents may not recognise the early signs of Craniosynostosis, which can have a life-altering impact on their child’s health and development. Sharing stories like Arthur’s can empower parents to seek early intervention, access resources, and gain a better understanding of the powerful role technology can play in addressing the challenges presented by Craniosynostosis.

The Role of Technology in Medical Advancements

Technology in Motion’s TiMBandAir CS is just one example of how cutting-edge advancements in the medical field can improve the lives of patients and their families. Technology continues to open new doors for treatment possibilities and in Arthur’s case, has proven to be a game-changer in his battle against Craniosynostosis.

Arthur’s journey with Craniosynostosis and the remarkable progress he has made with the help of Technology in Motion’s TiMBandAir CS is a testament to the power of awareness, early intervention, and support from innovative technology. By sharing their story on BBC Sounds, Daisie and her family are spreading hope and encouragement to parents faced with the challenges of Craniosynostosis.

It is essential to continually support advancements in healthcare technology, as it holds the key to unlocking transformative treatments for patients like Arthur, granting them a brighter, healthier future.

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