Living with Craniosynostosis - BBC Podcast | Technology in Motion

Living with Craniosynostosis – BBC Sounds Podcast

Living with Craniosynostosis – BBC Sounds Podcast

A Journey of Hope: Arthur’s Battle with Craniosynostosis and the Role of Technology in Motion’s TiMBandAir

Craniosynostosis is a condition in which the bones in a babies skull join together too early. This can lead to an abnormal and misshapen head , developmental delays and possible neurological issues. One brave mother, Daisie, has shared her story of her son Arthur’s journey with Craniosynostosis on BBC Sounds, in hopes of raising awareness for the condition and shedding light on the role that Technology in Motion’s TiMBandAir helmet has played in transforming Arthur’s life.

This blog post shares insight on Arthur’s condition, the innovative TiMBandAir technology utilized in his treatment, and the importance of spreading awareness about Craniosynostosis.

Life with Craniosynostosis

Arthur was diagnosed with Craniosynostosis fairly early, and by that point, his fused skull had led to a worrying head shape. After undergoing extensive surgery to correct the issue, his parents were left with a crucial decision: How to best treat and reshape his delicate skull after surgery? This is where Technology in Motion’s TiMBandAir comes in after having endoscopic surgery ( which is much less invasive than traditional surgery ) to correct the issue then his parents have to ensure Arthur wears a helmet 23 hours a day for a year to ensure that his head moulds and grows normally. this is where the TIM BAND CS is used. This 3d printed helmet is lighter and more ventilated than other helmets used and makes helmet therapy easier and more manageable.

Understanding TiMBandAir.

TiMBandAir Helmet in black

TiMBandAir CS is a 3d printed lightweight, ventilated helmet /orthosis that is individually made for the baby after surgery. It can be used to shape and mould the babies head gently until the skull has grown normally until 18months – 2 years of age. It is made from a lightweight 3d printed outer shell that allows for air circulation to keep the baby comfortable while its 3D shape gently reshapes¬† the skull. Arthur’s helmet is custom-fitted and modular, ensuring that it grows with him to provide optimal support throughout his journey to a healthier head shape.

The Benefits and Results

By wearing the TiMBandAir for 23 hours a day, Arthur has made remarkable progress in his recovery. The helmet allows Arthurs head to grow naturally whilst reshaping his skull.¬† Arthur’s parents have reported noticeable improvements in his head shape, development, and confidence despite the potential risks and complications associated with Craniosynostosis.

Raising Awareness for Craniosynostosis

Craniosynostosis BBC Sounds Podcast

Daisie’s decision to speak about Arthur’s experience with Craniosynostosis on BBC Sounds highlights the importance of raising awareness for this condition. Many parents may not recognize the early signs of Craniosynostosis, which can have a life-altering impact on their child’s health and development. Sharing stories like Arthur’s can empower parents to seek early intervention, access resources, and gain a better understanding of the powerful role technology can play in addressing the challenges presented by Craniosynostosis.

The Role of Technology in Medical Advancements

Technology in Motion’s TiMBandAir is just one example of how cutting-edge advancements in the medical field can improve the lives of patients and their families. Technology continues to open new doors for treatment possibilities, and in Arthur’s case, has proven to be a game-changer in his battle against Craniosynostosis.

Conclusion

Arthur’s journey with Craniosynostosis and the remarkable progress he has made with the help of Technology in Motion’s TiMBandAir is a testament to the power of awareness, early intervention, and support from innovative technology. By sharing their story on BBC Sounds, Daisie and her family are spreading hope and encouragement to parents faced with the challenges of Craniosynostosis.

It is essential to continually support advancements in healthcare technology, as it holds the key to unlocking transformative treatments for patients like Arthur, granting them a brighter, healthier future.

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