There has been a dramatic rise in the incidence of plagiocephaly since the Back to Sleep Campaign, and thus demand for treatment has also risen. Increasingly, parents are looking for specially moulded plagiocephaly helmets to treat their baby’s condition. Unfortunately though, parents then discover that they cannot get a helmet for their baby’s flat head syndrome on the NHS. The NHS refuses to fund this kind of treatment, with it being almost unheard of for parents to obtain a plagiocephaly helmet on the NHS.
Why is it that, in spite of mounting pressure from parents, private clinics, and the press, the NHS is still refusing to change its stance on providing plagiocephaly helmets on the NHS? This guide covers everything you need to know about the matter.
If you’ve noticed a flattening on your baby’s head and have been trying to do your research online or via various other resources, you may be a little overwhelmed at the different types of flat head syndrome and what each variation means.
Flat head syndrome is understandably a confusing condition for many who are only just finding out about it, so let this resource be a quick and easy guide to the different types of flat head syndrome.
Trying to decide whether to give your baby plagiocephaly treatment with or without a helmet is by no means an easy task. Conflicting attitudes and opinions from GPs, HVs, the press, private clinics and other parents can often serve to heighten the anxiety – no matter how honourable the intentions behind their advice might be. (more…)
Mini Directory of Plagiocephaly Advice and Support Websites
Having a baby with flat head syndrome can feel rather overwhelming at times. While the condition is not proven to have a negative effect on development, it can still be distressing for parents who, naturally, want what is best for their little ones. But you are not alone. In the UK, plagiocephaly affects around half of all babies under the age of one to some degree.
No matter what stage of the plagiocephaly journey you and your family are at, there are several fantastic resources out there which you can turn to for plagiocephaly support. Whether you wish to share your experiences with other parents or seek advice on plagiocephaly from the experts, this mini directory will help you find the right places to go in times of need.
Can Flat Head Syndrome Cause Brain Damage?
Following a diagnosis of plagiocephaly, parents often carry out extensive research online to try and understand exactly how the condition affects the brain or seek out clinical online studies to help them decide whether to treat and which treatment option will have the best results for their baby. (more…)
If you suspect that your baby might have positional plagiocephaly, naturally you’ll be wondering how severe the deformity is relative to other infants, and whether or not you should seek treatment. But how is plagiocephaly measured, and what system is used as a severity assessment for Plagiocephaly? (more…)
Study to investigate the behavioural, cognitive and neurological impairments associated with craniosynostosis and plagiocephaly
In 2012, we received a piece of news regarding USA research on craniosynostosis and plagiocephaly. This article highlighted the Department of Pediatric Psychiatry at Seattle Children’s Hospital’s participation in an NIH-funded study of the neurobehavioral correlates of craniosynostosis. This craniofacial disorder is characterized by the premature fusion of two adjoining plates of the skull, which result in malformations and dysmorphology of the head in the absence of corrective surgery.
As the number of enquiries from adults and parents with older children regarding plagiocephaly treatment continues to increase, we are left with the difficult task of informing adults that we are unable to help infants who have plagiocephaly after 14 months of age. In our ongoing pursuit to offer parents and carers a wealth of advice, information and research on plagiocephaly, we are addressing one of the biggest questions parents ask us on a daily basis…
It’s not uncommon for babies to be diagnosed with both plagiocephaly and torticollis. The relationship between plagiocephaly and torticollis is slightly unusual as causality can go in either direction. In other words, sometimes plagiocephaly can cause torticollis and sometimes it’s the other way round. Keep reading for a more in-depth explanation of the relationship between plagiocephaly and torticollis!