Having recently completed his TiMband treatment with flying colours, Daniel’s mum, Rebecca, shares their journey. (more…)
Tanya has recently finished the TiMband journey with her son, Oliver. Graduating with fantastic results, Tanya shares the journey they went through:
Nottingham mum, Stacey, knew that her daughter’s Plagiocephaly needed to be treated in order for it to get better. Stacey talks us through Annaïs’ journey with both Plagiocephaly and Torticollis:
“Annaïs was a twin and spent a lot of time upside down in the womb with little space.” As a result of this, Stacey noticed that her daughter was born with a misshapen head. Naturally, she thought this would correct itself now that Annaïs had more space out of the womb.
Natalie, mother of 2 young boys with brachycephaly shares her son’s TiMband transformation with us:
When our first child was born, we noticed that he had severe brachycephaly. Following the advice of our GP health visitors and paediatrician, we did not seek treatment, assured that the issue would self-correct. Unfortunately, the head shape deformity did not improve over time and our eldest son, now 3 years old, has to live with brachycephaly.
Jacqueline, mother to TiMband graduate, Logan, tells us all about her family’s plagiocephaly journey:
We first noticed there was something not quite right when Logan was only about a month or so. He only ever slept with his head to the right and there seemed to be a restriction of movement in his right arm. He’d had the standard health visitor checks and I got him weighed weekly so mentioned it to them then but nothing was really done about it. On Logan’s 8 week check-up, I raised my concerns with the GP who explained flat head syndrome and the importance of tummy time.
Jenny, mother to baby Seb, walks us through their family’s plagiocephaly journey:
When Seb was around 12 weeks old we started to notice that something wasn’t right. Seb’s head was flat at the back, his forehead was pronounced and there was a bulging to either side of his head over his ears. I raised these concerns with our Health Visitor who told me, “it will probably be alright by the time he’s about four years old and, if not, his hair will cover it up”. Needless to say, we were not comfortable with this response. It was such a ‘what if’ type scenario and where your little one is concerned, you like to try and do everything you can to make sure things are right for them.
From the setbacks to the celebrations, Nicola, mother of adorable baby Jenson, describes her little man’s plagiocephaly journey:
Jenson has always been a good sleeper, too good in fact. However, what we didn’t know was that his sleep was affecting his head shape!
Steph, mother to TiMband graduate Ardle (one year helmet-free, hooray!), shares her little man’s story:
We initially noticed there was something wrong with Ardle’s neck when he was 4 weeks old. However, he wasn’t officially diagnosed with flat head syndrome until he was seen at the Royal Hospital for Sick Children in Glasgow when he was just under 4 months old. At approximately 8 weeks old, when it became clear he had a wonky head shape, I sought information online and we received treatment from a chiropractor, osteopath and NHS physiotherapy. We tried repositioning techniques and undertook exercises for his neck.
Six-month-old Erskine boy, Reihan is suffering from a condition called flat head syndrome, also known as Plagiocephaly. His parents Susan and Andrew from Renfrewshire, have been disappointed with the lack of awareness of the syndrome and the treatment available to correct it.
Mum-of-two, Susan, is keen to increase profile of the condition, which she battled to get funding for.
When Reihan was just two-weeks-old, Mum Susan noticed that he always laid his head on one side when she put him down to sleep. Susan recalls: “I mentioned it to the Health Visitor. She advised me to try repositioning techniques when I placed him in his cot. We tried this for several weeks, but it proved difficult and his tendency was always to lie with his head to the right hand side.”
“We also had concerns about the forming of Reihan’s fontanel, which we shared with our GP. We went to see him on several occasions and he referred us to the RAH (Royal Alexander Hospital). It was here that Reihan had his head X-rayed to check that all the bones were forming correctly. The results of the scan were fine which was a relief, however, we were still concerned with the shape of Reihan’s head. It was so flat at the back and down one side.
Online, Susan read other parents’ stories and learnt that there were clinics across the country, including one in Glasgow providing treatment. “Without hesitation we made an appointment to take Reihan to see the lead clinician at the Technology in Motion from clinic in Glasgow and thank goodness we did. We haven’t looked back since. The clinic provides a treatment called TiMBand. It’s a helmet that’s fitted to the baby’s head and remoulds the head to the shape it should be. He has to wear it for 23 hours a day and has really taken to it.
“I was a bit worried at first as he has never been very good at wearing anything on his head, but he has accepted it very well and it is not causing him any bother. The treatment isn’t currently funded by the NHS which we think is shocking as one in 30 babies suffer with the condition. We did manage to get part funding from HeadStart 4 Babies and we had to use our holiday savings to make up the rest. A small price to pay for Reihan’s head shape to be normal! We were adamant that we needed to get it sorted, it can cause all sorts of bother later in life.”
Sandie Waddell is a leading expert in the treatment of Plagiocephaly at the clinic and is managing Reihan’s PlagioCare programme. She added: “In two months he has achieved the goals that we set out to achieve. Reihan is responding extremely well to the treatment and we are all delighted.”
“His asymmetry has altered by 10mm so far and we have at least one month left in treatment. There is a visual improvement in the facial asymmetry and the asymmetry at the back of his head.”